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Huntington Study Group to Begin Observational Study in Huntington's Disease (HD)

Description:
All HD clinic patients and their familiy members, HD Caregivers Support Group participants, HDSA New England region newsletter subscribers.

Eligibility:
The following individuals will be eligible to participate in this study: 1) those who have HD or tested positive for the HD gene; 2) parents, children, and siblings of individuals who have HD or tested positive for the gene; 3) grandparents and grandchildren of those participating in COHORT who have HD or tested positive for the gene; 4) spouses and gene negative family members of those participating in COHORT who have HD or tested positive for the gene.

Payment:
None

Contact:
Mary Jane Fitzpatrick, APRN
860-679-4441
Bonnie Hennig, LCSW
860-679-4441
Huntington Study Group
800-487-7671
Email: fitzpatrick@psychiatry.uchc.edu

More Info:
www.Huntington-Study-Group.org

Location:
University of Connecticut Health Center Huntington's Disease Program 263 Farmington Avenue Dowling North-Second Floor Farmington, CT 06030-6204 (860) 679-4441

Mailing Address:
Mary Jane Fitzpatrick, APRN, MC6204
University of Connecticut Health Center
263 Farmington Avenue
Farmington, CT 06030-6204

Primary Investigator:
Kaloyan S. Tanev, M.D.

IRB #: 06-447-2

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